My Life With IC



I am an information hoarder

I really love my urogynecologist’s office, even though my reasons for being there often stress me out. It is a very holistic practice; in addition to the three doctors in this practice, there are a number of nurses, nurse practitioners, a dietician, physical therapists, and possibly other professionals I have yet to meet. I feel very lucky to be a patient there; I feel that the staff are extremely well educated about treatment options for pelvic issues. Furthermore, I’ve found all of them to be very willing to learn more. (My urogynecologist even told me at a past appointment to “Keep Reading!” up on my conditions.)

A quick glance around the office suite shows it to be similar to other doctors’ offices in that you find anatomy posters and informational brochures and what-not provided by vendors. I wasn’t surprised, then, to see a poster with little tear-off slips in the office restrooms, with three web addresses on them. To my eye, it was pretty clear this poster was provided by some vendor, and investigating the websites this evening, I found I was correct.

Even so, the third website caught my attention, and I’d like to mention it here. It’s called The Accidental Sisterhood. It seems to be focused on pelvic floor physical therapy – which is of special interest to me lately since I am pursuing such physical therapy through my urogynecologist’s office. I have already decided that if I have children, and I have a daughter, I will be teaching her pelvic floor exercises as soon as it’s appropriate. Even if she’s lucky, and does not get interstitial cystitis, chances seem high that she will have some other issue related to her lady bits. I could rattle off a long list of female friends who have PCOS or endometriosis, and more whom I suspect have one of these conditions but have never been diagnosed. I can even name a few people who simply have had slight incontinence issues due to childbirth. To me, teaching my hypothetical daughter pelvic floor exercises just like teaching her to brush her teeth or something: it’s just good hygiene.

Sorry for the rant: back to the website! Given the company I suspect sponsors this website (MedTronic), it is not surprising that the site is especially focused on pelvic floor health and bladder issues. There’s a book about this by the same title – and I’m an avid reader, as you’ve likely figured out – so I ordered it, as well as a DVD and a stylish and discreet voiding journal. They are offering the book free to approximately 3,000 people, so I ended up spending a total of $21 for the book, DVD, journal, and expedited shipping. A pretty good deal, I think (better than their “kit” deal, I think, especially since I already have enough resistance bands to keep me going for awhile). I believe most of the readers of this blog are friends and family, but if you happen to see this entry and you suffer from interstitial cystitis, you might want to check this website out and get yourself a free book.

(I hope this is obvious, by the way, but I’m not being paid by MedTronic to say nice things.)


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